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Jul 31, 2008

My life

Hey there everyone, well its been a long time..Just an update with my life that i want to share with everyone! My daughter had brain surgery Jan.10, 07 She was diagnosis with Chiari Malformation Type 1 or CMI We found out she had this when she just couldnt deal with her headaches any longer.To bad not to many dr.'s know what this is.. So in a short story on this ill do my best.cmi,the cerebellum is elongated,protrudes through the opening at the base of the skull or foramen magnum, and resides in the upper srinal canal.Normally,only the spinal cord passes through the foramen magnum and down into the spinal canal. As such, sufficient space exists for the cerebral spinal fluid or csf to drain from the skull into the spinal canal.In cmi the additional space at the foramen magnum and the upper spinal canal is restricted by the presence of the lower cerebellum or cerebellar tonsils. So over time it comes blocked and you cant get fluid down to the spinal cord.So they went in and removed the tonsils, so the fluid to get through.As of today the surgery didnt work and she gets headaches everyday and we go to the er at least once a month. She has been to 100's of dr. and has been on 100's of med. so for now we just pray. She is 17 and lives life to the fullest, nothing is going to stop her, she is strong.. She works pt and goes to school full time. They are having the first walk called over the states sept.20th, all money we get from this will help ed. the dr.s  and family's about this. The closest state for our walk is in indiana, in evanville.. We cant wait to go. If anyone has this or wants to know more about it go to www.conquerchiari.org. Well thats all for now. Have a great painful day.